The Caregiver's Journey

To Policy Makers

The time may come when you want to broaden your advocacy skills to change the policies or laws of local, state, or federal government.

Systems advocacy uses many of the same skills that you have been learning. Join with others to help pass important laws. Veterans and military service groups as well as TBI-related groups may be interested in advocating for change.

You may find the idea of being an advocate hard or scary. Most family caregivers grow more at ease over time as they practice these skills. Laws such as the Americans with Disabilities Act and the Family and Medical Leave Act were passed due to the advocacy of people just like you.

You will have moments of triumph and moments of setbacks. But if you keep at it, you will find that your own confidence and skills will grow and change you as a person. And, you will have made a difference in the world.

The Brain Injury Resource Center and the Brain Injury Association of America have tool kits, fact sheets, and other materials to help you develop your TBI advocacy skills. There are groups who can help you speak up for your family member. Veterans service organizations and military service organizations can also advocate on your behalf. See Disability.gov for more information.