Traumatic Brain Injury A to Z - Frequently Asked Questions

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Dizziness

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It’s not unusual for patients to feel dizzy during TBI recovery. Watch as Tracy and the group explore strategies for managing dizziness.
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Dizziness

Julie
You know Michelle, now that Tom’s awake he’ll probably be moving around more. You may find that he complains about dizziness.

Tracy
That’s right, Julie. Dizziness is a very common effect of TBI. Tom may complain that the room is spinning, moving, you know causing that sense of vertigo. So if that happens, he could lose his balance, he could fall. You just want to “fall-proof” the house.

Carl
Julie had me get rid of all her area rugs and electrical cords, things that Sam could slip or trip on. We also put on non-slip mats on the shower and bath floors.

Tracy
Good idea, Carl. Good idea. Also, you want to make sure that the room is well lit. That Tom is encouraged to use any of the assistive devices that his team might’ve provided for him.

Travis
What’s an assistive device?

Tracy
Oh things like canes, walkers…equipment that may help your Dad get around when he comes home.

Okay, just a few more things… You’ll want to remind your Dad to avoid sudden movements. It can also help to sit for a few minutes before walking. You know it just gives the brain time to adjust. So encourage him to sit or to lie down as soon as he feels dizzy.

Julie
Sam didn’t seem to get dizzy very often at first, but once he started walking again, he couldn’t seem to keep his balance. They had this kind of belt like contraption that Carl would hold onto while Sam walked up and down the halls in the hospital. It was a good part of Sam’s therapy.

Carl
Heck, it was good therapy for me, too. At least I felt like I was doing something.

Tracy
Something very helpful, Carl. Sam’s lack of balance is pretty common. Our brains control our physical movement, our balance, so obviously a TBI can cause problems with that. Now fortunately, those problems usually go away over time and with physical therapy.

In fact, many of the effects that you see may improve over time. Some of the others might be sensory changes, spasticity, vision problems, seizures, a variety of cognitive effects are some of the possibilities. So you’ll find a description of what to expect, along with those tips on how to manage those conditions, in the Managing Less Common Effects of TBI in your Guide for Caregivers.

Okay, I think this is a good point to take a break.

This week please take some time to write in your journal. It’s important. If you haven’t started one yet, you’ll find a template in your Guide for Caregivers. Keep track of the progress that your family member is making - - even those… those small steps. And write down your experiences, your feelings. But do take time for yourself.

Julie
Along that line, Tracy, we use a website called caringbridge.org. When Sam first got hurt, everyone in our family was calling every day, trying to get information. And it was just too much; it was overwhelming. Carl and I couldn’t keep up, and stay with Sam at the same time. Then the people at the Fisher House in Landstuhl, told us about caringbridge. It’s great. You can download pictures, and create a website for your injured soldier, and keep everyone posted. Every day I go on there and write in my journal. It’s good therapy for me, and our entire family can check up on Sam’s progress.

Tracy
That’s terrific, Julie. Yeah, I’ve met many people who’ve used both caringbridge and another website, called caringpages.com. It’s really helped in a couple of ways - - keeping family and friends updated, serves as a journal for the caregiver. You know if you have a chance, check the sites out. I think they’ll help.

So next week lets talk about taking care of yourself, which is key to being an effective caregiver. Okay. Thanks everybody for coming. And remember, I’m here for you if you need anything, you know where to find me. Okay.
 

Frequently Asked Questions

What are Common Physical Effects of TBI?

  • Headaches
  • Sleep Changes
  • Fatigue/Loss of Stamina
  • Dizziness
  • Balance Problems (Tendency to Fall)
  • Sensory Changes
More information - Managing Physical Effects of TBI

What Physical Effects May Be Less Common?

  • Spasticity
  • Hemiparesis, Hemiplegia
  • Bladder/Bowel Changes
  • Changes in Swallowing and Appetite; Weight Loss or Gain
  • Visual Spatial Problems
  • Apraxia
  • Seizures
  • Heterotrophic Ossification
More information – Managing Physical Effects of TBI

What are Common Cognitive Effects?

  • Confusion
  • Slowed Speed of Processing
  • Attention Problems
  • Difficulties with Memory
  • Planning and Organization Problems
  • Difficulty with Decision Making and Problem Solving
  • Confabulation
More information – Managing Cognitive Effects of TBI

What are Common Communication Effects?

  • Does Not Speak Clearly
  • Problems Starting a Conversation
  • Word Finding Problems
  • Reading Comprehension
More information – Managing Cognitive Effects of TBI

What Communication Effects Are Less Common?

  • Dysarthria
  • Interrupting or Having a Hard Time Taking Turns in Conversation
  • Topic Selection
  • Writing
  • Non-Verbal Communication Issues

More information – Managing Cognitive Effects of TBI


What Are Common Behavioral Effects?

  • Frustration, Increased Anger/Aggressiveness
  • Impulsivity or Difficulties in Self-Control
  • Poor Judgment
  • Reduced or Lack of Initiation
  • Repetitive Behaviors (Perseveration)
  • Less Effective Social Skills
  • Changes in Sexual Behaviors
  • Lack of Self-Awareness
More information – Managing Cognitive Effects of TBI

What Are Common Emotional Effects?

  • Depression
  • Increased Anxiety
  • Mood Swings (Emotional Lability)
  • Changes in Self-Esteem
More information – Managing Cognitive Effects of TBI

Will our lives ever get back to normal?

The course of recovery after TBI depends on several factors. Your lives may return to “normal” or you may need to learn to adjust to a “new normal.” It can take time to adapt to the life changes after TBI. Although many problems will improve in time, some symptoms may persist throughout the person’s lifetime. Research has shown that many people who experience TBI do lead a life they find satisfying, even if it is not exactly the life they had prior to the injury.


How Should I Organize Medical and Military Records?

A notebook that includes sections for:
  • Personal information – This includes important facts, such as your service member/veteran’s Social Security number, military service record, emergency contacts, and allergic reaction to medications.
  • Military service papers – Keep copies of military service records, etc.
  • Medication log – Write down all the drugs taken, dosages, dates, side effects, and problems.
  • Medical reports, tests, scans – Ask for copies of all reports, scans, and tests, and file them in this section of the notebook. Put CT and MRI scans of the brain on a CD. Keep these to share with future providers.
  • Notes and questions – Include a three-hole punched notepad in your notebook. You can use it to take notes and then insert the sheets in the right sections.
  • Resources and information – This is the place to keep all the forms and information you have received at appointments.
  • Calendar of appointments – Use a calendar with enough room to write all of your appointments.

You may want to keep another notebook or file with the records needed to apply for medical and family benefits or Medical Evaluation Board/Physical Evaluation Board (MEB/PEB). (See Module 4 for more information about the MEB/PEB.) This file will help when you apply for financial aid, a job, or more medical care. When you are not using this file, keep it in a locked place to keep it safe.

This file could include:

  • Social Security card, military records, and insurance cards
  • Power of Attorney
  • driver’s license, birth certificate, marriage certificate
  • school and work records
  • tax returns and assets.


How Can I Tell My Child about TBI?

Communicate in an age-appropriate way what has happened to your family member with TBI. Protecting your children by withholding information may backfire. Children have active imaginations that may create a scenario worse than reality.
More information - Helping Your Children Cope


What Can I Do If Caregiving is Just Too Much?
Have a back-up plan for finding temporary or more permanent residential care for your family member with TBI. Discuss quality of life issues with your family and health care professionals. Your choices may include:
Give others permission to care for your loved one. Seek assisted living facilities and board and care homes—for those who have difficulty living alone but do not need daily nursing care. Consider nursing homes, also called skilled nursing facilities—for individuals who need 24-hour nursing care and help with daily activities. Skilled nursing care can also be provided at home by nurses you hire. Check with your case manager(s), VA liaison, and/or military liaison for residential care benefits that may be available to your family member with TBI.


What Can I Expect When My Family Member Comes Home?
Moving back home is an exciting step in the recovery process! Although the transition to home is certainly positive, it is important to be aware that it may also be stressful at times. Some families report that during the first few days or weeks at home, their family member regress and need more time to adapt to a new environment, even if it’s a familiar one. It is helpful to add structure and consistency right away at home by scheduling activities and rest breaks much like the schedule observed in rehabilitation. Recreational and occupational therapists are your best allies in this effort and they will work closely with you to practice community re-entry.
More information - Preparing for the Transition Home & Transitioning Home


What is the Family and Medical Leave Act?

The Family and Medical Leave Act (FMLA) provides service members/ veterans and their spouses who are employed by companies with 50 or more employees with up to 26 weeks of unpaid leave per year to care for a seriously-injured service member without losing their jobs or health care insurance.
For the most current information: www.dol.gov.
For More Information – LINK to Scene 14 - FMLA


What Temporary Housing is Available for Caregivers?
If your service member/veteran is being treated at a military treatment facility (MTF) or a VA Polytrauma Center, you may be able to stay nearby for free or at a low cost.
Housing for family members includes:

  • Malone House at Walter Reed
  • Navy Lodges
  • Fisher Houses at the VA Polytrauma Centers.
Nonprofit organizations may also make some apartments near treatment centers available to families at little or no cost. Check with your POC to find out what temporary housing is available where your family member is being treated.
More information - Addressing Everyday Issues


 

Related Information:
Dizziness
Other Physical Effects
Glossary
Frequently Asked Questions
"He had visual field deficits right after the injury. They’ve since gotten a little bit better, but he still has visual field deficits. He lost hearing in his right ear, so he can’t hear sometimes when I’m trying to talk to him." -  Aimee W.

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